Medical Abuse In ME Sufferers

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(This Page maintained by the MAIMES Team, Craig Robinson and Kathryn Twinn)

MAIMES Update 5 September 2019 - 40 MPs signed up and 163 MPs adopted!

Mission Statement

  • MAIMES aims to get a Public Inquiry into the Abuse of ME Sufferers

What can you do to help?

  • EITHER 1- follow up on an adopted MP and try to get them to sign up to the MAIMES campaign [see list below of adopted MPs] [get friends or family to help by all means]
  • OR 2- If your MP isn't adopted yet, adopt them, by email or in person [see list of MPs below to check that your MP isn't adopted yet] [get friends or family to help by all means]
  • Just email Gail (gail@doctormyhill.co.uk ) and she will tell you what to do

What is MAIMES?

WOULD YOU LIKE A UK PUBLIC INQUIRY INTO THE ABUSE OF ME SUFFERERS OVER DECADES OF NEGLECT?

WOULD YOU LIKE A FREE COPY OF DR MYHILL'S NEW CFS/ME BOOK TO GIVE TO YOUR MP?

Dr Myhill's new book "Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Encephalitis" (2nd Edition)

If you would like such a Public Inquiry, then please read on.

Definitions

  • An Adopted MP = this MP has been contacted or is due to be contacted by a MAIMES volunteer. An adopted MP has not yet signed up to the campaign. MAIMES volunteers can still arrange to meet these MPs and try to convince them. See below for more details.
  • A Signed Up MP = this MP has signed up to the MAIMES campaign to have a Public Inquiry into the abuse of ME sufferers

What to do

  • This is a campaign to get MPs to sign slips that will be used to demand a Public Inquiry into the abuse of ME sufferers over the last few decades. This campaign is called MAIMES. [the slip calls for a Public Inquiry]
  • The first goal is to sign up as many MPs as possible to the aims of MAIMEs. Once we have sufficient MPs on side we will approach the Secretary of Health to demand a Public Inquiry
  • We first need “adopters” who are preferably physically able (see comments below) to attend their MPs’ surgery and also who feel that they can explain the issues as detailed below in as convincing a manner as possible! Please - we don't want anyone to feel pressurised in any way to do this. Our goal is to make people better not worsen their condition by attempting something they are not capable of. This is why we also suggest family, friends or carers getting involved where this may be possible - see below also.
  • If you can be such an “adopter” please email your details and your MP’s name and constituency details to Gail (gail@doctormyhill.co.uk)
  • Gail will then send the adopter [ie YOU!] a free copy of Dr Myhill’s new book second edition: “CFS/ME – it’s mitochondria not hypochondria”. Your chosen MP becomes 'Adopted' at this stage
  • Attend your local MPs surgery, give him/her the copy of the book, show them Chapter 1 and try to convince to them to sign the slip!
  • If you are successful, please scan the slip and return it to Gail (gail@doctormyhill.co.uk). At this point your chosen MP becomes 'Signed Up'
  • If you cannot convince your MP to sign the slip, please leave them with the PDF COPY OF DETAILED MAIMES LETTER. Please also continue to contact your adopted MP and try to convince them via sheer persistence!
  • We prefer the adopter to be able to visit physically but if you are too ill to attend then please email Gail and ask to become an email adopter
  • If your constituency MP has already been adopted by someone else, then you can still try and convince them - use the information below and either visit your MP or email them. The more people who contact their constituency MPs in this way, the better!
  • Also if you want to go in groups to visit your constituency MPs then please do - this will also improve things as it will mean that there is less chance of brain fog getting in the way of persuasion - two heads are better than one!
  • Or if you feel that friends and family or your carer or anyone could act on your behalf then that would be great too!

Confirmation Slip for MP to sign

HERE IS THE SLIP THAT WE ASK YOU TO GET SIGNED BY YOUR ADOPTED MP TO SUPPORT MAIMES' AIM OF HAVING A PUBLIC INQUIRY INTO THE MEDICAL ABUSE OF ME SUFFERERS:

DATE …………………………………………………………………………
I am the MP for ……………………………………………………………
NAME …………………………………………………………………………
I agree with the aims of Campaign MAIMEs to establish that:

  • ME is a physical disease with primarily physical causes.
  • That this should be properly reflected by NICE Guidelines and by NHS treatments available to ME sufferers
  • That this should be properly reflected by compensation, disability and pension benefits.
  • That we require a Government funded, cross party Public Inquiry to establish the above.
  • SIGNED
  • Date
  • Witnessed by

For you to print off -- PDF COPY OF MAIMES SLIP

Convincing your MP

  • TELL YOUR MP HOW MANY OTHER MPs HAVE BEEN ADOPTED AND HOW MANY HAVE SIGNED UP. Presently we have 163 adopted and 40 signed up MPs
  • Show them the information in this pdf file PDF COPY OF MAIMES INTRODUCTION AS ABOVE
  • Use the links below in the External Links section.
  • Explain why this is of Public Importance - number of people affected is 250,000 per NHS figures - see here NHS page on CFS
  • Explain that the issues surrounding CFS/ME are very complex and that ONLY a Public Inquiry can investigate all these issues satisfactorily.
  • Try to find local issues surrounding CFS/ME - the MP must act for their own constituents - look up local support groups.
  • Emphasise the impact on children - see this paper Long Term Sickness Absence due to ME/CFS in UK Schools: An Epidemiological Study With Medical and Educational Implications and Special problems of children with myalgic encephalomyelitis/chronic fatigue syndrome
  • Please see the links in the "External Links" section below which contain more useful evidence and campaign tools.
  • If the MP doesn't sign, even after repeated follow ups as suggested in the section ACTION above, then ask them to put down in writing WHY they will not sign. This can then be used against them at a future date!
  • Please keep Gail up to date with all developments even in cases where your MP refuses to sign up.
  • Please forward all communication to Gail, even if it is 'negative'. Refusals are important too!

MAIMES Update 5 September 2019 - Signed Up MPs

We now have 40 MPs signed up to MAIMES. These MPs, who should be congratulated are:

  • ANTONIAZZI Tonia
  • CABLE Sir Vince
  • CAMPBELL Ronnie
  • CHALK Alex
  • COAKER Vernon
  • DABY Janet
  • DAVEY Edward
  • DAY Martyn
  • DONELAN Michelle
  • DREW David
  • GEORGE Ruth
  • GOODWILL Robert
  • HAIGH Louise
  • HARRINGTON Richard
  • HEPBURN Stephen
  • HOWARTH Sir George
  • HOLLINGBERY George
  • HOYLE Sir Lindsay
  • HUDDLESTON Nigel
  • LAKE Ben
  • LAING Eleanor
  • LAMB Norman
  • LAVERY Ian
  • LEWELL-BUCK Emma
  • LYNCH Holly
  • McGUINN Conor
  • NEWLANDS Gavin
  • O'MARA Jared
  • OWEN Albert
  • SHANNON Jim
  • SHEERMAN Barry
  • SIMPSON David
  • SIMPSON Keith
  • STEWART Bob
  • STRINGER Graham
  • WALKER Thelma
  • WARBURTON David
  • WEST Catherine
  • WHATELY Helen
  • WRAGG William

MAIMES Update 5 September 2019 - adopted and signed up MPs as at 5 September 2019

Those in red and 'starred' are "signed up" MPs and those in black are "adopted" MPs

MP Constituency
ALI Rushanara Bow & Bethnal Green
**ANTONIAZZI Tonia** **Gower**
ARGAR Edward Charnwood
BACON Richard South Norfolk
BADENOCH Keric Saffron Walden
BALDWIN Harriet West Worcestershire
BARCLAY Stephen North East Cambridgeshire
BARRON Kevin Rother Valley
BLACK Mhairi Paisley & Renfrewshire
BLACKFORD Ian Ross, Skye and Lochaber
BLACKMAN Kirsty Aberdeen North
BLOMFIELD Paul Sheffield Central
BRADLEY Karen Staffordshire Moorlands
BRINE Steve Winchester & Chandlers Ford
BROCK Deidre Edinburgh, North & Leith
BROWN Lyn West Ham
BROWN Nick Newcastle upon Tyne East
BUCKLAND Robert Swindon South
BURGHART Alex Brentwood & Onga
BUTLER Dawn Brent Central
**CABLE Sir Vince** **Twickenham**
CADBURY Ruth Brentford & Isleworth
CAIRNS Alun Vale of Glamorgan
**CAMPBELL Ronnie** **Blyth**
CARDEN Dan Liverpool Walton
CARTLIDGE James South Suffolk
CAUFIELD Maria Lewes
**CHALK Alex** **Cheltenham**
CHAMPION Sarah Rotherham
CHAPMAN Douglas Dunfermline & West Fife
CHERRY Joanna Edinburgh South West
CHURCHILL Jo Bury St Edmunds
CLARKE Simon Middlesborough South & East Cleveland
**COAKER Vernon** **Gelding**
COURTS Robert Witney
CRAUSBY Sir David Bolton North East
CREAGH Mary Wakefield
CRYER John Leyton & Wanstead
**DABY Janet** **Lewisham East**
**DAVEY Edward** **Kingston and Surbiton**
DAVIES Glyn Montgomeryshire
**DAY Martyn** **Linthigow & East Falkirk**
DE PIERO Gloria Ashfield
DEBONAIRE Thangham Bristol West
DJANOGLY Jonathan Huntingdon
DODDS Anneliese Oxford East
**DONELAN Michelle** **Chippenham**
**DREW David** **Stroud**
DUNCAN Sir Alan Rutland and Melton
DUNNE Philip Ludlow
EAGLE Maria Liverpool
EVANS Chris Caerphilly
EVENNETT David Bexleyheath & Crayford
FFYSH Marcus Yeovil
FRANCOIS Mark Rayleigh & Wickford
FRAZER Lucy South East Cambridgeshire
FREER Mike Finchley and Golders Green
**GEORGE Ruth** **High Peak**
GHANI Nusrat Wealden
GILDERNEW Michelle Fermanagh & South Tyrone
**GOODWILL Robert** **Scarborough & Whitby**
GOVE Michael Surrey Heath
GRADY Patrick Glasgow North
GRAHAM Luke Ochil & South Perthshire
GRANT Helen Maidstone & The Weald
GRANT Peter Glenrothes & Central Fife
GRAYLING Chris Epsom & Ewell
GREEN Chris Bolton West and Atherton
GREEN Damien Ashford
GREEN Kate Stretford & Urmston
GRIEVE Dominic Beaconsfield
GROGAN John Keighley & Ilkley
**HAIGH Louise** **Sheffield Heeley**
HALL Luke Thornbury and Yale
HAMMOND Stephen Wimbledon
HARDY Emma Kingston upon Hull West and Hessle
**HARRINGTON Richard** **Watford**
**HARRIS Carolyn** **Swansea East**
HOWARTH Sir George Knowsley
HAYES Helen Dulwich & West Norwood (London)
HAZZARD Chris SDLP South Down
HEALEY John Wentworth
HENDRICK Mark Preston
HENDRY Drew Inverness, Nairn, Badenoch and Strathspey
**HEPBURN Stephen** **Jarrow**
HERBERT Nic Arundel & South Downs
HOARE Simon North Dorset
HOBHOUSE Wera Bath
**HOLLINGBERY George** **Meon Valley**
**HOYLE Sir Lindsay** **Chorley**
**HUDDLESTON Nigel** **Mid Worcestershire**
HUGHES Eddie Walsall North
HUNT Jeremy South West Surrey
HUSSAIN Imran Bradford East
JACK Alister Dumfries and Galloway
JAVID Sajid Bromsgrove
JENKIN Bernard Harwich & North Essex
JOHNSON Caroline Sleaford & North Hykeham
JONES Andrew Harrogate
JONES Darren Bristol North West
KEEGAN Gillian Chichester & West Sussex
KENNEDY Seema South Ribble
**LAING Eleanor** **Epping Forest**
**LAKE Ben** **Ceredigion **
**LAMB Norman** **North Norfolk**
LAMONT John Berwickshire, Roxburgh & Selkirk
LATHAM Pauline Mid Dernyshire
**LAVERY Ian** **Wansbeck**
LEADSOM Andrea South Northamptonshire
LEE Karen Lincoln
LEE Philip Bracknell
LEIGH Sir Edward Gainsborough
**LEWELL-BUCK Emma** **South Shields**
LEWIS Clive Norwich South
LIDINGTON David Aylesbury
LITTLE-PENGELLY Emma South Belfast
LUCAS Caroline Brighton Pavilion
LUCAS Ian Wrexham
**LYNCH Holly** **Halifax, West Yorkshire**
LLOYD Stephen Eastbourne
MADDERS Justin Ellesmere Port & Neston
MAK Alan Havant
MANN Scott North Cornwall
MARSDEN Gordon Blackpool, South
MASKEY Paul Belfast West
MATHESON Christian City of Chester
MAY Theresa Maidenhead
McDONALD Stewart Glasgow South
**McGUINN Conor** **St Helens**
McMORRIN Anna Cardiff North
McNALLY John Falkirk
McPARTLAND Stephen Stevenage
MORDEN Jessica Newport East
MORGAN Nicky Lougborough
MORGAN Stephen Portsmouth South
MORTON Wendy Aldridge/Brownhills
MURRAY Ian Edinburgh, South
MURRAY Sheryl South East Cornwall
MURRISON Andrew South East Wiltshire
**NEWLANDS Gavin** **Paisley & Renfrewshire North**
NEWTON Sarah Truro and Falmouth
**O'MARA Jared** **Sheffield Hallam**
**OWEN Albert** **Anglesey/Ynys Mon**
PATEL Pritti Witham
PENROSE John Weston-Super-Mare
PERKINS Toby Chesterfield
PIDCOCK Laura North West Durham
POULTER Dr Dan Central Suffolk & North Ipswich
POUND Steve Ealing North
POW Rebecca Taunton Deane
PRISK Mark Hertford & Stortford
QUIN Jeremy Horsham
REES-MOGG Jacob North East Somerset
REYNOLDS Emma Wolverhampton North East
RICHIE Margaret SDLP South Down
RODDA Matt Reading East
ROBINSON Geoffrey Coventry North West
ROBINSON Mary Cheadle Hulme South
ROWLEY Lee North East Derbyshire
RUANE Chris Vale of Clwyd
SAVILLE ROBERTS Liz Dwyfor Meirionnydd
SEELY Bob Isle of Wight
**SHANNON Jim** **Strangford**
**SHEERMAN Barry** **Huddersfield**
SHERRIFF Paula Dewsbury, Mirfield, Denby Dale & Kirkburton
SIDDIQ Tulip Hampstead and Kilburn
**SIMPSON David** **Upper Bann**
**SIMPSON Keith** **Broadland**
SKIDMORE Chris Kingswood
SKINNER Dennis Bolsover
SMITH Jeff Manchester, Withington
SMYTH Karin Bristol South
SOBEL Alex Leeds North West
SOUBRY Anna Broxtowe
**STEWART Bob** **Beckenham**
STEPHENSON Andrew Pendle
SUNAK Rishi Richmond
STONE Jamie Caithness, Easter Ross, East Sutherland
**STRINGER Graham** **Blackley & Broughton**
SWAYNE Desmon New Forest West
SWEENEY Paul Glasgow North East
THOMAS Derek St Ives
TREDINNICK David Bosworth
TREVELYAN Anne-Marie Berwick upon Tweed
TRUSS Liz South West Norfolk
VAZ Valerie Walsall South
VILLIERS Theresa Chipping Barnet
WALKER Charles Broxbourne
WALKER Robin Worcester
**WALKER Thelma** **Colne Valley**
**WARBURTON David** **Somerton & Frome**
**WEST Catherine** **Hornsey & Wood Green**
**WHATELY Helen** **Faversham and Mid Kent**
WHITTINGDALE John Maldon
WIGGIN Bill North Herefordshire
WILLIAMS Hywel Arfon
**WRAGG William** **Hazel Grove**
WRIGHT Jeremy Kenilworth & Southam
ZAHAWI Nadhim Stratford-Upon-Avon
ZEICHNER Daniel Cambridge

Useful External Links

You may wish to print these off and show them to your MP:

Other links:

PDF and Word copies of useful documents


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